My mom found the following article that someone wrote to help people understand what a person with chronic pain and fatigue goes through on a daily basis. I have shared it with a few friends and it really helped them understand! I hope that it helps you understand too!
http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf
I have also been asked to share with you some poetry that I found. I am NOT a great writer, but when I read this poetry, it was as if I had written it myself! I also sent these to several friends to help them understand!
http://www.butyoudontlooksick.com/2007/07/poetry_sleepless_nights.php#more
http://www.butyoudontlooksick.com/2007/01/poetry_alone_at_night.php#more
http://www.butyoudontlooksick.com/2006/11/poetry_being.php#more
http://www.butyoudontlooksick.com/2006/06/poetry_pain.php#more
http://www.ehlersdanlos.ca/dialogue.htm
http://www.freewebs.com/chiariwarrior/mypoetry.htm
This is a long, but VERY good, letter that someone dealing with chronic pain wrote to help a "normal" person understand! EVERYTHING described is how I have felt, so I thought it may help you understand as well!
http://www.thedailyheadache.com/2008/02/helping-others-understand-a-letter-to-people-without-chronic-pain.html
I hope this has helped you better understand what I have been feeling. Let me know if you have any questions!
Mackenzie
http://www.butyoudontlooksick.com/navigation/BYDLS-TheSpoonTheory.pdf
I have also been asked to share with you some poetry that I found. I am NOT a great writer, but when I read this poetry, it was as if I had written it myself! I also sent these to several friends to help them understand!
http://www.butyoudontlooksick.com/2007/07/poetry_sleepless_nights.php#more
http://www.butyoudontlooksick.com/2007/01/poetry_alone_at_night.php#more
http://www.butyoudontlooksick.com/2006/11/poetry_being.php#more
http://www.butyoudontlooksick.com/2006/06/poetry_pain.php#more
http://www.ehlersdanlos.ca/dialogue.htm
http://www.freewebs.com/chiariwarrior/mypoetry.htm
This is a long, but VERY good, letter that someone dealing with chronic pain wrote to help a "normal" person understand! EVERYTHING described is how I have felt, so I thought it may help you understand as well!
http://www.thedailyheadache.com/2008/02/helping-others-understand-a-letter-to-people-without-chronic-pain.html
I hope this has helped you better understand what I have been feeling. Let me know if you have any questions!
Mackenzie
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